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Jill Bettencourt |
Thanks for the support |
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Wed May 16 15:58:46 -0700 2012 |
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Libbie |
My brother and I have bumpy bones |
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Sun May 06 15:05:49 -0700 2012 |
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Alex |
I have bumpy bones |
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Sun May 06 14:59:48 -0700 2012 |
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Kyle V |
I am in Windsor, On, Canada |
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Sat May 05 11:46:05 -0700 2012 |
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Caressa |
I am 8 years old and would like to meet other children like me. |
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Thu Apr 19 11:50:18 -0700 2012 |
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Caressa |
I am 8 years old and would like to meet other children like me. |
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Thu Apr 19 11:50:15 -0700 2012 |
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daniel frost |
21 years old |
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Wed Mar 21 01:09:18 -0700 2012 |
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Carol Blum |
got it from my dad |
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Mon Mar 12 13:51:42 -0700 2012 |
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Carol L. Blum |
got it from my dad |
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Mon Mar 12 13:38:11 -0700 2012 |
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Carol L. Blum |
got it from my dad |
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Mon Mar 12 12:43:02 -0700 2012 |
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Natalie, birth year: 1989 |
This site is really cool. I wish everyone the best of luck. Contact me anytime, my email: NatalieLLopez@hotmail.com |
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Mon Feb 20 14:33:49 -0800 2012 |
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Sam O. (and Mom) |
My Mom and I both live with this. |
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Thu Jan 19 20:58:23 -0800 2012 |
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Sean (49yo) Sophie (4yo) |
Dad and Daughter, both HME |
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Wed Jan 18 08:12:44 -0800 2012 |
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Meredith Lutz |
Total of 3 in the family with MHE |
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Sun Jan 15 22:19:05 -0800 2012 |
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Hana Starova |
i have several bumpy bones unlike my brother Urim who has a lot (maybe 15) |
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Sat Dec 17 19:20:47 -0800 2011 |
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Kim |
Hi! |
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Fri Nov 18 12:08:33 -0800 2011 |
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Veronica Ratzloff |
just diagnosed 11/11 |
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Mon Nov 14 21:37:41 -0800 2011 |
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vignesh |
hi |
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Fri Oct 21 09:35:39 -0700 2011 |
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Kaitlyn [link] |
I have MHE and having pain after 2 surgeries that left me with 8 incisions on my legs. |
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Sun Oct 16 00:30:07 -0700 2011 |
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Amy |
I have MHE too |
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Fri Oct 07 08:29:31 -0700 2011 |
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Amy |
I have MHE too |
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Fri Oct 07 08:29:26 -0700 2011 |
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Sasa |
sasha3322@gmail@com |
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Mon Oct 03 06:14:27 -0700 2011 |
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Lene |
My sons and I have bumpy bones |
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Mon Sep 26 08:57:16 -0700 2011 |
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Lene |
My sons and I have bumpy bones |
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Mon Sep 26 08:57:12 -0700 2011 |
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Alexandre |
I'm 5! |
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Sun Sep 25 20:32:55 -0700 2011 |
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Alex White |
19yr old male |
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Sat Sep 24 17:26:52 -0700 2011 |
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Suzanne H |
I get it from my mom's side. |
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Sun Sep 18 12:25:48 -0700 2011 |
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Melodee Ewing [link] |
13 years old |
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Sun Aug 28 23:28:44 -0700 2011 |
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Melodee Ewing [link] |
13 years old |
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Sun Aug 28 23:28:40 -0700 2011 |
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Camp family - 3 |
Only dad does not have MHE of the 4 of us! This group is fantastic! |
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Sat Aug 27 17:17:42 -0700 2011 |
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Camp family |
3 out of 4 of us have MHE - mom and kids - this MHE group is fantastic! |
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Sat Aug 27 17:16:37 -0700 2011 |
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Megan Williams |
Mount Isa, Queensland - megan_janice@hotmail.com |
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Tue Aug 23 04:35:03 -0700 2011 |
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Anna Duenas |
bumps on my frame but a smile is my fame |
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Thu Aug 18 01:53:49 -0700 2011 |
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Anna Duenas |
bumps on my frame but a smile is my fame |
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Thu Aug 18 01:53:46 -0700 2011 |
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Paisley H.C, |
3 yrs old. London ON |
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Wed Aug 17 15:00:20 -0700 2011 |
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easton |
thank you |
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Sat Aug 06 22:23:30 -0700 2011 |
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camie |
finally someone who knows |
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Sat Aug 06 22:20:57 -0700 2011 |
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Savannah |
I'm #2! |
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Thu Aug 04 14:38:04 -0700 2011 |
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Estes Family [link] |
daddy and 3 kids |
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Sat Jul 16 12:31:36 -0700 2011 |
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Estes Family [link] |
daddy and 3 kids |
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Sat Jul 16 12:31:35 -0700 2011 |
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Cathy Thorn [link] |
Hi! |
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Wed Jun 22 11:53:39 -0700 2011 |
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Joshua McTavish |
got it from mom! (Ponca City, OK) |
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Mon Jun 13 02:25:52 -0700 2011 |
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Reesa Dickinson |
Ponca City, OK |
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Mon Jun 13 02:24:10 -0700 2011 |
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Jan B Figueras |
bumpy bones |
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Sun Jun 12 18:47:55 -0700 2011 |
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Jodie McNab |
I have MHE born March 1991 |
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Sun Jun 12 14:53:03 -0700 2011 |
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MIke:) |
awsum the only person in Georgia!! |
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Wed Jun 08 21:09:11 -0700 2011 |
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Tonia |
currently 32, have bumpy bones and have had many surgeries and now my 18 month daugher was just diagnosed. |
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Wed Jun 01 10:36:20 -0700 2011 |
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Michelle Walker |
I'm in Haarlem |
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Tue May 24 14:49:44 -0700 2011 |
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Roberta Bradley |
I am 47 |
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Tue May 10 12:47:59 -0700 2011 |
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Roberta Bradley |
I am 47 |
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Tue May 10 12:47:54 -0700 2011 |
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Roxyy Kumbalek |
Perrysburg, Ohio |
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Fri May 06 21:55:18 -0700 2011 |
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Jim Ezzell, Hallie, Helen [link] |
Bless this org for the info they provide |
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Wed Apr 27 23:38:39 -0700 2011 |
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Jordan Janicki |
Kelowna, BC --I am 8 |
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Fri Apr 15 22:53:09 -0700 2011 |
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Urim Starova |
i have mhe too. |
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Fri Apr 08 15:58:50 -0700 2011 |
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Vicky L |
my sister, 2 brothers both nieces and 1 nephew my son and daughter all have mhe |
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Fri Apr 08 04:33:22 -0700 2011 |
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Victoria Lynch |
my 2 brothers, and 1 sister , my 2 nieces, 1 nephew son and daughter all have mhe |
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Fri Apr 08 04:31:49 -0700 2011 |
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Nikki Gottshall Chase |
Interested in meeting others with MHE |
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Sun Mar 27 21:40:57 -0700 2011 |
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September Ray [link] |
19 Years Old with MHE |
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Tue Mar 22 09:21:18 -0700 2011 |
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Ashley |
My daughter and I both have MHE. |
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Fri Mar 11 12:52:11 -0800 2011 |
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Sarah |
I have bumpy bones too! |
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Thu Mar 03 12:13:22 -0800 2011 |
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trina [link] |
found out 30 yr ago,gets worse with age! major deformity with knees,hips.shoulders |
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Tue Feb 15 13:48:37 -0800 2011 |
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Eliza |
Live, Laugh and Love |
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Sun Feb 13 11:43:05 -0800 2011 |
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Eliza |
Live, Laugh and Love |
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Sun Feb 13 11:43:00 -0800 2011 |
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Davis |
Live for Today!!! |
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Sun Feb 13 11:40:35 -0800 2011 |
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Davis |
Live for Today!!! |
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Sun Feb 13 11:40:31 -0800 2011 |
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Adam |
Wellington New Zealand |
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Thu Feb 03 19:10:08 -0800 2011 |
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Sue |
Wellington New Zealand |
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Thu Feb 03 19:08:59 -0800 2011 |
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Ellie |
From here, live in US now |
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Tue Jan 25 15:57:15 -0800 2011 |
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Ellie |
Mom's email: KWeymiller@aol |
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Tue Jan 25 15:53:36 -0800 2011 |
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Brynlea Lamden |
I'm 4 |
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Thu Jan 20 01:12:42 -0800 2011 |
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cheryl e batty |
i hav mhe i live in liverpool |
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Mon Jan 10 15:25:02 -0800 2011 |
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Kayla Lickly [link] |
Bellevue, Nebraska. Never knew what I had as I was growing up untill my grandmother was diagnosed. I am currently 20 Me, Father, Aunt, Grandmother. |
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Fri Jan 07 01:15:36 -0800 2011 |
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Tyler Chambers |
osteochondroma |
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Thu Dec 30 14:23:08 -0800 2010 |
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Tyler Chambers |
multi osteochondroma |
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Thu Dec 30 14:23:05 -0800 2010 |
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Vicki Urbin |
Died from fatal interaction of pain medication and antidepressants associated with MHE |
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Sun Nov 28 12:56:41 -0800 2010 |
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Vicki Urbin |
Died from fatal interaction of pain medication and antidepressants associated with MHE |
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Sun Nov 28 12:56:40 -0800 2010 |
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Danny Applewhite [link] |
Committed Suicide in 1994 from the pain of MHE RIP uncle danny |
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Sun Nov 28 12:53:13 -0800 2010 |
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Danny Applewhite [link] |
Committed Suicide in 1994 from the pain of MHE RIP uncle danny |
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Sun Nov 28 12:53:12 -0800 2010 |
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Julie Mae (Potter) Thies [link] |
'beautiful body on a twisted frame' half of my family has MHE |
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Sun Nov 28 12:45:43 -0800 2010 |
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Gary |
Perth Western Australia mrgarynew@gmail.com |
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Mon Nov 22 01:38:11 -0800 2010 |
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Zoey Redfern |
3 years old |
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Tue Nov 09 14:50:05 -0800 2010 |
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jessica |
detroit,mi |
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Thu Oct 28 01:19:33 -0700 2010 |
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Tara |
My brother and i both have MHE |
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Tue Oct 26 19:20:25 -0700 2010 |
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Amber [link] |
Im a teenager living with this disorder |
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Thu Oct 07 12:53:58 -0700 2010 |
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Kyle |
Hi Halo fans! |
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Fri Sep 24 12:56:55 -0700 2010 |
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Brooklyn |
got this from my dad |
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Wed Sep 22 23:30:09 -0700 2010 |
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Katie Bower |
keep your chin up :) |
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Wed Sep 15 21:23:10 -0700 2010 |
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Michelle Tuton |
I live in Phoenix. |
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Thu Aug 26 21:10:36 -0700 2010 |
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Parker |
My dad and I have bumpy bones |
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Wed Aug 25 20:48:52 -0700 2010 |
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Tim W |
31 year old with bumpy bones |
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Wed Aug 25 20:46:41 -0700 2010 |
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Starr |
Normal, IL |
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Thu Aug 12 00:39:54 -0700 2010 |
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Nikki wineyards@yahoo.com |
My daughter (2 years old) has HME/MO. I would like to know some more people with HME/MEH in Portugal, to get some more information about doctors etc. I can read Portuguese. |
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Mon Aug 09 06:13:16 -0700 2010 |
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Tammy |
Wasilla, AK |
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Sun Aug 08 19:52:44 -0700 2010 |
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Amy MacDonell |
Hello to all of the bumpy people out there from Louisville, KY |
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Sun Aug 01 02:00:48 -0700 2010 |
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Donna MacDonell |
Thanks for signing our map! |
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Sun Aug 01 01:55:50 -0700 2010 |
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Chandler |
diagnosed May 2009 |
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Tue Jul 27 09:06:10 -0700 2010 |
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Aimee Hanlon |
Medina, OH |
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Fri Jul 23 20:49:41 -0700 2010 |
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Loretta & Matthew |
Hi from Newburgh NY |
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Fri Jul 23 17:45:35 -0700 2010 |
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seaborn kelley III |
Vestal, NY 13850 |
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Fri Jul 23 15:02:51 -0700 2010 |
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Bartholome Boys and Mom [link] |
We have it too |
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Thu Jul 15 08:45:36 -0700 2010 |
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Nagham |
MHE |
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Thu Jul 01 04:48:12 -0700 2010 |
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Mitchell Semple |
I am 16! |
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Sat Jun 26 20:50:22 -0700 2010 |
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Kellie, Madison, and Dawson |
I have MHE and passed it on to both of my children~Great to see others on here! |
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Thu Jun 17 22:16:12 -0700 2010 |
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Shania [link] |
I am 7, today i was diagnosed 16/06/10 |
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Tue Jun 15 19:06:02 -0700 2010 |
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Juan Pablo Villa [link] |
Jul 20 1989 |
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Mon Jun 14 13:23:45 -0700 2010 |
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Norbert |
I'm 8 years old |
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Wed Jun 02 11:24:02 -0700 2010 |
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Hugo Fernandes |
30 yo with MHE contact: hfariafernandes@gmail.com |
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Tue Jun 01 19:42:50 -0700 2010 |
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Ethan |
Hi! |
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Sat May 29 22:31:55 -0700 2010 |
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Jenna and Jaylene |
We are identical twin sisters and we both have MHE |
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Thu May 27 11:23:41 -0700 2010 |
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Bev |
MHE is still occuring in our family after many many years |
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Fri May 21 09:46:52 -0700 2010 |
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Bev |
MHE is still occuring in our family after many many years |
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Fri May 21 09:46:49 -0700 2010 |
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Tyler Morris |
13 yrs old South Lyon, MI |
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Thu May 20 19:51:56 -0700 2010 |
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Anne |
33 in El Paso, Tx |
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Tue May 04 04:32:15 -0700 2010 |
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Dawn |
Hi! |
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Sun May 02 10:01:05 -0700 2010 |
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Tara |
My 15 year old daughter |
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Sat May 01 13:53:32 -0700 2010 |
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Don Hahn |
you're not alone |
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Sat May 01 04:40:11 -0700 2010 |
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jubert |
Hi, fellow MHE |
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Thu Apr 29 18:12:20 -0700 2010 |
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Jill Howey |
Cleveland Heights, Ohio |
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Mon Apr 19 22:23:30 -0700 2010 |
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Pierce |
age 9 |
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Wed Apr 14 18:52:24 -0700 2010 |
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- |
- |
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Tue Apr 13 21:07:54 -0700 2010 |
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Julia Power [link] |
I'm 9 |
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Mon Apr 12 13:39:30 -0700 2010 |
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Chele Zelina [link] |
Welcome to the MHE Coalition Map, please register and let us know where you are located. |
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Sun Apr 11 14:18:07 -0700 2010 |
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Mary |
Hello family and friends |
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Mon Mar 29 10:59:58 -0700 2010 |
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Ian |
11 yrs.old |
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Sun Mar 21 20:16:28 -0700 2010 |
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Susan Wynn [link] |
Welcome to The Bumpy Bone Club! |
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Mon Mar 15 19:02:53 -0700 2010 |
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David Winegar |
Our son Tomas, born in 2002, has MHE |
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Mon Mar 15 05:34:32 -0700 2010 |